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Part Eleven: References & Acknowledgements

References

1. Inventory of Healthcare Information Standards Pertaining to The Health Insurance Portability and Accountability Act (HIPAA) of 1996 (P.L. 104-191), American National Standards Institute Healthcare Informatics Standards Board (ANSI-HISB), January 1997.
2. The Health Insurance Portability and Accountability Act (HIPAA) of 1996 (P.L.104-191) Other Federal Legislation reviewed:
3. Medical Records Confidentiality Act of 1995 (S. 1360)
4. Fair Health Information Practice Act of 1997 (H.R. 52)
5. Medical Privacy in the Age of New Technologies Act of 1966 (H.R. 3482)
6. Health Information Modernization and Security Act (H.R. 1766/S. 872)
7. Patient and Health care Provider Protection Act of 1996 (H.R. 4315)
8. Patient and Healthcare Provider Protection Act of 1997 (H.R. 1191)
9. National Competitiveness Act of 1993 (S. 4)
10. National Information Infrastructure Act of 1993 (H.R. 1757)
11. American Standards for Testing and Materials (ASTM), Standard Guide for Properties of a Universal Healthcare Identifier (UHID), Designation: E1714-95, Approved August 15, 1995, Published October 1995.
12. ASTM E 1384-96 Guide for Content and Structure of the Computer-based Patient Record
13. ASTM E 1762-95 Guide for Electronic Authentication of Health Care Information
14. ASTM E 1769-96 Guide for Properties of Electronic Health Records and Record Systems
15. "The Debate Over a National Healthcare Identifier" - a draft article by Barry R. Hieb, M.D., Tom Payne, M.D., and Elmer Gabrieli, M.D.
16. Computer-based Patient Record Institute (CPRI), Action Plan for Implementing a Unique Health Identifier, Version 1.0. (CPRI, September 1996).
17. Computer-based Patient Record Institute (CPRI), Position Paper: Computer-Based Patient Record Standards, April 30, 1993.
18. Computer-based Patient Record Institute (CPRI) Patient Identifier Work Group Report Version 2.1, June 1995.
19. W.L. McMullen, "Using Patient Identifiers from Legacy Systems for Healthcare Information Infrastructure", presentation at the 10th International Symposium on the Creation of Electronic Health Record Systems, Washington D.C., March 24, 1994.
20. The Department of Health and Human Services Guiding Principles for Choosing Standards For the record, 1997
21. Protecting Privacy in Computerized Medical Information, Report to the Senate Subcommittee on Federal Services, Post Office, and Civil Service, and House Subcommittee on Government Information, Justice, and Agriculture - Roger C. Herdman
22. AMIA, Position Paper on Standards for Medical Identifiers, Codes and Messages Needed to Create an Efficient Computer-Stored Medical Record, April 20, 1993
23. Medical Record Institute, Analysis on Patient Identifier, Toward an Electronic Patient Record, August 1996
24. Medical Record Institute, Position Paper 1: Patient Identifiers - Insurance Identification and Patient Identification in Healthcare, August 1993.
25. "Concept Models of Patient Identification: Issues Surrounding the Use of Social Security Numbers for Patient Identification" Toward an Electronic Patient Record, Medical Record Institute 1993,
26. ASC X12N TG2, Special Workgroup 8, Uniform Health Care Identification Card, Special Report, Draft 7, October 14, 1993.
27. ASC X12N, Unique Identifiers for the Healthcare Industry, Technical Advisory Group White Paper, October 1993.
28. Harris-Equifax, Health Information Privacy Survey 1993 July 26 to August 26, 1993.
29. Task Force on Privacy, Office of ASPE and AHCPR, Conference Proceedings, Health Records: Social Needs and Personal Privacy, February 11-12, 1993.
30. US Congress, Office of Technology Assessment, Protecting Privacy in Computerized Medical Information, May - November 1992.
31. Community Medical Network Society, An Industry Perspective, A Nationwide Survey of Hospital Leadership, November 1993.
32. Gordon & Glickson P.C., Computer-Based Patient Record Survey, March 1994.
33. Institute of Medicine, Health Data in the Information Age - Use, Disclosure and Privacy, National Academy of Press, Washington D.C., 1994
34. "Background Material on SSN and Related Discussion" offered to Staff of Heathcare Task Force April 9, 1992.
35. Willis H. Ware "Proposal for a Medical ID" offered to Staff of Heathcare Task Force April 22, 1993.
36. Paul C. Carpenter, M.D., Christopher G. Chute, M.D., Ph.D., " The Universal Patient Identifier: A Discussion and Proposal," Proceedings of the Seventeenth Annual Symposium on Computer Applications in Medical Care, 1994, 4 pp 49-53.
37. Lawrence O. Gostin, JD., "Privacy and Security of Personal Information in a New Health Care System," JAMA November 24, 1993-vol270. No 20, pp 2487-2492.
38. Lawrence O. Gostin, JD., Legislative Survey of State Confidentiality Laws, with Specific Emphasis on HIV and Immunization.
39. William W. Lawrence, Ph.D., "Privacy and Health Research- A Report to the U.S. Secretary of Health and Human Services," May 1997.
40. Final Report of the Task Force on the Privacy of Private Sector Health Records, Joan Turek-Brezina, September 1995.
41. "Core Health Data Elements - Report of the National Committee on Vital and Health Statistics," August 1996.
42. AHIMA Position Statement - Patient Cards, November 1993.
43. Master Patient (Person) Index (MPI)-Recommended Core Data Elements, Journal of AHIMA Practice Brief, July 1997.
44. ACMI Resolution February 25, 1993 on Unique Person Identification Number
45. Peter Szolovits. Ph.D., Issac Kohane, MD. Ph.D. "Against Simple Universal Health-care Identifiers," JAMIA Volume 1 Number 4 Jul/Aug, 1994, pp 316-319
46. Peter Szolovits, Ph.D., Issac Kohane, MD. Ph.D. October 4, 1994 Draft of Universal ID Proposal based on Cryptography.
47. Testimony by Denis A. Calvert, Verifone, Inc. Before Subcommittee on Domestic and International Policy of the Committee on Banking and Financial Services, United States House of Representatives, June 11, 1996
48. Using Patient Identifiers from Legacy Systems (Directory Service) by W. L. McMullen Toward An Electronic Patient Record ?97 Proceeding Manual Volume Three Healthcare Identifiers:
49. Proposal for Unique Patient Identifier, Margaret Amatyakul, CPRI.
50. Unique Patient Identifiers: An Overview, Soloman I. Appavu
51. The ASTM UHID Standard, Barry R. Hieb, M.D.
52. Patient Identifiers: Religious Dogma, Passion, and Misconceptions, Peter Waegemann
53. Potential for the Use of Social Security Number as a Healthcare Identifier. Sandy Crank, SSA
54. Master Patient Index - Presentation Material by VAH
55. UHID-based Internal Control Number - Tony Seegar, VAH, Utah.
56. Community Health Information Partnership, Master Patient Index, Request For Information (RFI), Foundatation for Health Care Quality, July 22, 1996
57. "Framework for Identifying Requirements for Standards for the National Information Infrastructure" by Information Infrastructure Planning Panel (IISP).
58. "CORBAMed Domain Task Force RFP-1, Patient Identification Services, Request For Proposal," Object Management Group, November 30, 1996
59. CORBAMed White Paper: Interface Requirements for an Enterprise Master Patient Index (EMPI), John Farmer, Care Data Systems.
60. Health Data Science Corporation's response to CORBAMed RFP, June 6, 1997
61. Consortia (10 member corporations) response to CORBAMed RFP, May 30, 1997
62. Materials from Workshops on Components of Computer-based Records sponsored by CPRI, Los Alamos National Laboratory, Health Open Systems and Trials, HCFA, HL7, CORBAMed/OMG and others related to Master Patient Index Services, 1996.
63. MPI to MPI/Networking MPIs Working Group Summary, June 26, 1997.
64. Family Health Outcomes Project, University of California, San Francisco Core Date Element-based Common Patient Identifier Data Element Specifications, February 9, 1997
65. HL7 Special Interest Group: Master Patient Index Mediator (SIGMPI) Mission Statement Document, February 7, 1997.
66. HL7 Special Interest Group: Master Patient Index Mediator (SIGMPI) Presentation by James M. Gabler, HL7 SIG MPI Co-chairperson.
67. "Managing Care: The Role of Enterprise Person Directories" by James M. Gabler, HL7 SIG MPI Co-chairperson.
68. United States Postal Service Electronic Commerce Services presentation documentation from Charles R. Chamberlain, June 1997.
69. John G. Daugman, "High Confidence Visual Recognition of Persons by a Test of Statistical Independence," IEEE Transactions on Pattern Analysis and Machine Intelligence, Vol 15, No 11, November 1993.
70. IrisScan, Inc., "IriScan Biometric Human Iris Automatic Identification System Description", August, 26, 1997.
71. Special Healthcare Report, "VA issues 2.5 million ID Cards", Automatic I.D. News, February 1997.
72. Family Health Outcomes Project, University of California, San Francisco Core Date Element-based Common Patient Identifier Data Element Presentation by Dr. Geraldine Oliva, M.D., Ph.D. to NCVHS on June 4, 1997.
73. Director of California Department of Public Health's communication regarding the implementation of Common Data Elements, Marh 21, 1997.
74. F:2 Unique National Patient Identifiers Track, Toward an Electronic Patient Record ?97, May 2, 1997
75. Work Group for Electronic Data Interchange (WEDI) "Report to Secretary of US Department of Health and Human Services, July 1992
76. "Computerized Records: A Guide to Security," American Psychiatric Association Resource Document.
77. Joint Commission of Accreditation of Healthcare Organizations (JCAHO) Information Management Standards for Hospital Accreditation 1997
78. Joint Commission of Accreditation of Healthcare Organizations (JCAHO) Quality Control Standards for Laboratory Accreditation Manual 1997.
79. "Digital ID Backgrounder," VeriSign, Inc., December 1996.
80. "For the Record, Protecting Electronic Health Information," National Research Council, National Academy Press, 1997
81. Lifetime Human Service and Treatment Record Number Document by Edward F. Hernandez, Bureau of Records and Statistics, San Francisco Department of Public Health.
82. "Nomadicity Standards Needs (IISP Need #91) Unique and Anonymous IDs" - Information Infrastructure Planning Panel (IISP)
83. "Statement on the use of the Social Security Number as a National Identifier." presented by Mark H. Epstein, Sc.D, Executive Director, National Association of Health Data Organizations (NADHO) to the Subcommittee on Social Security, U.S. House of Representatives on March 13, 1991
84. Statement of Principles on Information for Health System Reform, NADHO, February 1994.
85. Overview of a Healthcare Information System Architecture Beyond the Computer- based Patient Record.
86. MPI-based Directory Technology by Mary Ellen Buccafurno, Northern Telecom, May 8, 1997.
87. "Confidentiality and Privacy: UNIQUE IDENTIFIERS-HOW TO MAKE IT WORK: BLENDING POLICY AND TECHNOLOGY," CHMIS Conference Transcripts, March 1995
88. "Method of Identifying Individuals in Health Information Systems", Deirdre mulligan, Center for Democracy and Technology, 1995

Acknowledgments

1. Sandy Crank, Associate Commissioner, SSA
2. Dr. Barry Heib, MD., ASTM
3. Dr. Peter Szolovitz, Ph.D., Massachusetts Institute of Technology
4. Dr. Willis H. Ware, RAND
5. Dr. Chris Chute, MD., Mayo Clinic
6. Peter Weagamann, Medical Record Institute
7. William L. McMullen, Mitretek
8. Margaret Amatyakul, Executive Director, CPRI
9. Dr. Gerraldine Oliva, M.D., Ph.D.
10. Teddy Milder, PNP, PHN
11. James M. Gabler, HL7 SIG MPI Co-chair
12. Tim Brinson, CORBAMed, Co-chair
13. Tony Seegar, VAH, Utah.
14. Chaz Kastel, Ralph H. Johnson V.A. Medical Center, Charleston, S.C.
15. Mary Ellen Buccafurno, Northern Telecom
16. Edward F. Hernandez.
17. Derek Wang, SSA
18. Gary Dickinson, Health Data Sciences
19. James P. Brandt, VeriSign
20. Charles R. Chamberlain, USPS

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